I can remember the thrill of NEW shoes for school each year. I would go with my Mom on a special shopping trip before school started. We would go to Stride Rite , The Navy Exchange or JC Penny’s and we would find sneakers and then a pair School/church shoes. My all time favorite was a pair of black Mary Janes that had faint embroidery on the toe of tic-tac-toe in light green and red. I got them just in time to start 2nd Grade.  This was also the phase where I refused to wear pants, only dresses. I would accept leggings if it was cold out of necessity. So there I was in my early 90s bright colored dress and leggings and black Mary Janes. In hindsight, sort of dorky but at the time those little shoes made me feel so grown up.

Somewhere around the age of 9 or 10 when my growth plates were bending in unfortunate directions and I was coming to grips with the reality of chronic pain. Shoes started being a source of great angst.  This was also the time when shoes were changing and no longer was it cool enough to wear my black Mary Janes or My Little Pony Sneakers.  No longer could I wear what my classmates wore. All the girls were wearing jelly shoes or canvas shoes with no support.  We would go to shoe store after shoe store, nothing would fit except for Velcro sort of sneakers that the kindergarteners were wearing and not the middle schoolers.

I went through a combat boot phase in sixth grade. They were a statement and in middle school that seems to be the goal of foot wear. But they also offered my poor ankles some support. This again in hindsight was a fashion low point of my life in which I wore Christian T-shirts (that said things like Got Jesus?) and baggy jeans and combat boots.  One of the security guards who drove me around in the golf cart to band and lunch (which were a bit of a hike) commented that my choice foot wear was probably not the best thing for my feet.  I was horrified being a Type-A people please-er of adults in my world.  Thus ended the combat boot stage. Looking back, he probably did me a favor.

In high school, they started introducing the concept of FORMAL WEAR.  I knew I was in deep trouble the first time I went shopping for shoes for my first prom. Strapy, stringy, heeled plastic things that cost 70 dollars and were a tibia fracture waiting to happen. My sweet mother dyed ballet slippers for me. They had no support but they matched my dress.  I survived without any ER visits.  Then there was the uncovered shoulder ISSUE (previously described) in which I showed my keloided scars to the world. I was not a fan. As if I needed to be more of a freak show.

I then went through an extended phase where I just decided I hated dressing up. Sad thinking that in elementary school, I wanted to dress up and be girly EVERY DAY. I decided I was going to be a hippee who wore peasant boluses, carpi pants or longish skirts and grow my hair (already longer than most girls) longer.  This sustained me through the beginnings of college where I at least in part to thanks my mother and sister switched the hippee skirts for cuter knee length numbers for the Carolina sunshine.

I vividly remember kicking and screaming my junior year of college when all my friends and I decided to go to the Non-Greek formal. My roommates had to nearly  hold me down to put my hair up and do my make up. WE have pictures and evidence of this.  I wore mary janes that I also wore to interview for medical school in. As for interviews, I was so grateful for the stylish gray paint suit for interviews. my grandmother and I found in an expensive store in the big Mall in Norfolk that covered most of my shoes and all of my shoulders.

Then came weddings. It was prom on steroids except now the pictures will actually matter beyond the age of 18, someone will be looking at them for the next 50 years. And those people are my closest friends.  The first wedding I was in had brown dresses which while I did not love, I loved that I could wear small brown flats without concern.  Then I was in two weddings where I was thankfully allowed to wear black and red and thus black flats.

In medical school everyone got cute Danskos and such for the wards. None of  which I could get my feet in. I became mildly obessessed with KEEN shoes. Black and Brown Mary Janes that I wore to pieces in Kenyan Mud. I wore black chaco sandals to my doctorate hooding partly by accident (left my black flats in the car) and partly out of sheer spite of professional shoe wear.

Then came this year. Summer wedding. Yellow dress.  My big toe on the left has this gout like bunion on the metatarsal joint that makes even ballet flats uncomfortable. Again the strappy, string, heeled things are going to be a disaster. My friend tells me you can wear anything but CHACOS.  I go to the comfortable shoe store here and to my horror the only thing they have is a pair of brown Chaco flip flops. I was post call, on my way home for the weekend which included a dress fitting. I was out of time. So I bought them. They didn’t look like CHACOs. They look liked brown flip flops. 20 minutes later I was already regretting spending so much money on ugly flip flops.  My Southern Bell (on occasion) mother gritted her teeth when she saw them. She would later tell me that she had already decided that there was NO WAY I was walking down the aisle in those horrible shoes. I reminded her that at least they were not combat boots.  I got fitted for the dress in the shoes. And then promptly returned them when I got back to OHIO.

I decided at this point I was going to go bare foot. Meanwhile, my PT here when I got my initial post op eval was MORTIFIED that I made it through life so long without orthotics. I told her I had PTSD from such things as a child. She chided me, throwing the whole MD thing at me. I relented and found she was right my feet felt better. On the up side,  I recently discovered that I could wear wedges when I was given a pair of Allergia shoes for work. I loved them so much I bought a second pair in another color. For the first time in my life, people complemented me on my foot wear! I felt strangely like I had in second grade over those dorky tic-tac toe mary janes! So proud and grown up. Oddly, one would think I would get past this, not so much.

With this in mind, I prepared myself mentally for another go shopping again to look at spring wedding shoes.  There had to be something out there, if I could find professional shoes that were NOT so bad, maybe there was hope. One pretty spring afternoon walk resulted in the purchase of a somewhat NOT awful  pair of sparkly sandals with a slight wedge.  My mother approved via cell phone pictures!!! Even my bunion approved with the adjustable straps. I breathed a sign of relief that the pain of shoe buying was over for another year. Already plotting that I could wear the SAME shoes for the Indian wedding I am scheduled to be in next Spring. Maybe I can make it two years if I didn’t wear them in Africa.

As I walked out the of shoe store, I looked down at my feet in CHACOs no less. And I smiled, you know they are funny shaped and they cant wear shoes to save their little soles. But they have grown on me. We’ve been through a lot together. They have gotten me where I have wanted to go, where I have needed to go without cartilage and against the laws of bio-mechanics.  Yes they are calloused, crooked and lumpy but they also tell my story with their stronger contours.  They tell a story of faithfulness even in the mist of suffering. And maybe that is the point.  Maybe I have beautiful feet that tell a beautiful story after all.

from July…although hauntingly still true.

Long ago and far away I spent my summers wandering the streets of Bucharest playing with street kids, finding babies in back rooms of crumbling, stifling Soviet bloc hospitals. These summers defined me and it was here the dream was born to be a really excellent activist and pediatrician who could save babies from disease and from the poverty and stigma that they live under.    Then somewhere along the way I got caught up in a dream to study at a world class childrens hospital and caught up in all the academic rigmarole and danced the dance and sang the songs and won my way into a place that is so far removed from the  that dream that sometimes I still wake up and have to remind myself that I am not living in an alternate universe.

I am bruntout on the alternate universe. I am tired of staying up all night. I am tired of parents telling me they want me touch their children with my inexperienced, tired hands. I am tired of getting e-mails in my box that I only reviewed 9 systems in my review of system rather than 10 and the ED attending can’t get paid if I only have 9 in my note. I am tired fighting to put checks in an imaginary series of check boxes to fit some sort of magical mold that an elite pediatric resident is supposed to fit. And I keep waking up with a start because in my dreams I am doing what I have done every summer for the past 7 years up till this one, riding buses and fighting for forgotten children.   Suddenly in stead of falling in love with academic medicine or fellowship or something will give my pre-existing condition gimpy self sustainable health insurance I am missing as if I have lost my first love. As if we are painfully separated by a dream not deferred but given up and revised.

Here I was excelling in medical school, living my dream, planning my first trip to Africa and having no idea if I would be physically able to continue in a few months, years. I finally found the courage to get x-rays, a kind rheumatology fellow who I frankly owe my sanity to paged me and went over the films with me gently. He talked me into a steroid shot in which a the radiologist furthered my anxiety with talk of strange anatomy and bone density.  I made an appointment with the hip surgeon who I had met several years earlier and wrung my hands as I studied for Step 2, started my residency essays. The visit upset me even though I knew what was coming and gave me the strange transition of me explaining to my anxious mother what the doctors were saying. He gave me another steroid shot that was amazingly effective and I lived with denial for a summer, went to Romania and pretended that everything was ok. Perfected my residency essay, then my peds AI hit me like a freight train and my denial started to crumble.  My first patient died of pneumonia related to muscular dystrophy in an all night vigil of wailing parents and I was reminded of my sweet Romanian friend whose similar death had rocked my world in college.  Our parallel diseases differed in two major ways, there was a palliative yet potentially close to curative treatment for the symptoms of mine and even when I had no cartilage left…I wouldn’t die.  Visions of a beloved elderly patient with RA who had movement in her hands, was going blind and couldn’t get out of bed flashed through my brain…could I live with that reality?  Visions of the synthetic hip failing because of my bone density and knowing that once we took my femoral head they was no going back, if the prosthesis failed, I wouldn’t walk again.  After the on call vigil, I drove home to the mountains then onward to get a steroid shot.

Within in weeks, I could no longer deny it, the shot failed. I wasn’t sleeping now because of the pain.  It was everything I could do to keep the facade that I was just another medical student. I called my surgeon’s PA and cried in the child psych copy room and told her I wanted to do the surgery now.  (yes I had a nervous break down on the pysch floor…fun yes). Things fell into place, the surgeon fit me in (I am sure he was shaking his head thinking finally I was ready a year ago, this girl is nuts).  I passed Step 2, got my first residency interview and with tachycardia to the 120s, lectured my anesthesiologist on the decreased number of DVTs with spinals opposed to general as they rolled me into the OR.

I was a neurotic post-operative patient but I went back to medical school three weeks later, line danced at 5 weeks, interviewed for residency at 6 weeks, Kenya at 16 weeks  and by the time match day came I was taking the steps two at a time for the first time in my life.

I went through a similar period of denial and anxiety although much milder, fought to get steroid shots in Cincy( Part II, Part III). Epic fail, telling my  chief resident was near to the copy room incident. This time the PA tried to comfort me that even though there was a boat load of hardware in the hip, they would figure it out and I would be ok. I nearly lost my insurance coverage, took the Step 3 and then spoke in DC the week before.  By the time I got to the OR I found myself in a much better place than the previous time, believing that somehow the hip would work despite the hardware weakened bone and that I would walk out of this better than ever.  I found myself telling everyone (yay versed) my bucket list of things I wanted to do with two shiny hips (I remember this prior to heavier sedation but apparently I kept right on going although I don’t remember it). I woke up to the news that miracles of miracles the hardware had not prevented them from using the best kind of hip as expected and I had a 30 year lease at minimal. I was texting everyone I knew in the PACU and thanking everyone from the jainator to God for my incredible good fortune.  My family and I survived me with five weeks of unplanned toe touch weight bearing while the hardware holes healed despite a funeral, a mild incision infection and general angst on the part of a sibling.

And I find myself at 5 weeks post op sitting in an exam room across the hall from where this all began three years ago with the visit (see above). The PA comes in and asks me when I am going back to Africa?  She hands me the films with a grin. There they are, healing perfectly. Her optimism is infectious and suddenly as I remember how fragile it all seemed three years ago.I think back though to my first pediatric death and of my sweet friend Laura who died of a similar diseases (dying muscles and connective tissue…I have dying cartilage and connective tissue) and how in some strange way of the disability tribe I feel I owe them, they expect me not to waste this, to live with reckless abandon.

I am overcome by gratitude this time sans versed.  Nearly in tears.  The attending comes in  says my name, kisses my cheek and says “You’re Done!”  He grabs his cell and proceeds to call my pediatric ortho to tell him the good news. (yay for transition..although it was kind of a weird move)  He draws me my “life plan”  which includes one more visit at 6 months, then no more visits for 2 years.   It doesn’t seem real. No more hip pain, no more hip precautions, an inch taller (much to my sister’s dismay) I can throw away my crutches, 6 weeks of PT and then welcome to the rest of my life.

Mom and I drive back down the familiar spine of our beloved mountains, a little giddy despite the recent family sorrow, amazed at marvels of modern medicine, of grace and of the incredible joy of sweet relief and the sweet ability to dream.

Praise God.

Becoming a disabled physician is one of the greatest things I have done in my life but it also was among the most painful.  Being told that you have no right to be here either in attitude or in voice is not pleasant. Being a pioneer is life defining but it also emotionally and psychologically exhausting. At the end of my time at Wake Forest there was a series of unfortunate events, attempt to fix it and the epic fail.  I left some what devastated but determined to go out into the world of medicine and make my difference with or without my esteemed Alma mater’s support. Because while I may have failed in some regard as a pioneer I did what I set out to do which is become a physician.

I heard rumors last year that they had interviewed a disabled applicant here and there. I rolled my eyes and dreamed of telling them of going elsewhere although knowing that there were no safe places for us in the world of medicine as student doctors.  I went home and lectured last year and was welcomed like somewhat of a returning hero which was odd and bit over the top.

Then I heard nothing for a long time. I grew as a young physician in an environment where I am not entirely at home but am safe from the constant pecking at my heart that I will never be good enough although I have relapses.  I suture, I LP, I travel back to KENYA and take attending call, I get my first job offer, I move to a house and no longer feel like I am camping in exile.  I move on.

But I return home again to give lecture to another group of young student doctors who meet the cut that I apparently never quite made.  I am again welcomed. As I walk into the classroom I see something that nearly takes mybreath away.  There is a student on front row sitting with a place at the table literally (the classroom was not wheelchair accessible till my second or third year) in a power chair.  I have tears in my eyes.  In all my moving on, I had forgotten how much this matters to me, how deeply I was hurt and even though I had gotten the diploma, how much I felt like I had lost an equally important battle.

But in fact I won.  We won.

I corner the  Dean and demand why no one told me, he smiles sheepishly. I though you knew, he tells me.  I thought you knew.  I welcome the new student, she has heard so about me. She thanks me for paving the way. She applied at 31 schools, Wake Forest was the only one that accepted her despite her double degrees, top grades, from a dare I say more famous Carolinan institution with a unspeakable mascot that is percuilar shade of blue in Durham.  They chose me, she says,  and I know its partly because of you.  She has dreams of working with our tribe, of impacting children.  According to her anatomy professor she is top of her class.(a better student than I ever was…hehehe)

I give my lecture, I think the best I have ever done. The Dean says I have grown into a public speaker in my own right from being a terrified first year medical student. I look at him and I try politely to tell him that I no longer have anything to fear.

It didn’t end there, I had glorious Carolina afternoon catching up with friends, mentors and basking in the sunshine.  I sit and drink tea and laugh late into the night with old dear friends as we talk theology, justice, nostalgia and wit.

The next day, the Dean of Faculty (Dr BIGSHOT) calls me and asks me to come see him (he was out of town the day before). I show up in jeans in his formal office, he hugs me.  He immediately turns to the young woman I met the day before, isn’t it great he says. He goes on to tell me about what happened after I left.  He confronted the ED doctors who were fighting so hard to change our standards. In a faculty meeting, they gave presentation. They argued that if you asked 50 people out on the street if you want their doctor to run to a code, they would say yes.   Dr. B said, “Yes and 50 years ago people would have said they wanted their doctor to be white and male.”     That was the end of that he tells me.

We talk of global health and he gives me the finest career advice I had despite my esteemed current employer.  He tells me, pack your suitcase and go to Kenya you will figure the rest out as you go along.   He encourages me to follow my dreams and not be confined by the mold of the academic rat race in less I wanted to be.

But as I leave what sticks with me is that its rare in our lives that we are allowed to know the extent of impact we have on our piece of world.  I will never be able to put this on my CV or even discuss in an interview. I will never get an award for it or get my name published in a top journal.  But I will go to my grave knowing that I was privileged enough to change a few hearts in regards of my tribe.  I was able to at least for now make a safe place for disabled student doctors to study and grow and find their piece of the world to change.

A few days later in the mist of my ED shift, I got an e-mail from the Dean who told me that he overheard some first years talking about my lecture and how they would never use the word inspirational again (ha!) and how I had changed the way they think.

The movement goes on.

I tried so hard to be a good pioneer so people would wake up and take notice and now for the last year and half I did everything to just conform so that I could just be another physician.  I realize both are only fragments of the woman God has me becoming.  And finally after five years of wandering and feeling a little lost, I came home to myself an feel a sense of contentment.

Now  I am the doctor and I am in a global health pediatrics program.

Well snark it.

Now what do I do?

Everyone else has an idea of what I am to do. Heck, Wake has ideas. My adviser has ideas. My PD and my classmates have ideas. My parents have ideas.  My friends have ideas.   I feel pressured and pulled and spread out over a vast array of possibilities.

But I am idea-less.  I am vision-less.  I am directionless.  For first time since I was 14 I have no idea what I want.  And its terrifying. I keep running around in mental circles without going anywhere.

Maybe that’s the point,  Maybe that’s the bottom line.  Maybe I have been climbing the mountain for so long that I am not sure how to just sit and be at the top of the mountain.  Maybe I was brought to the top of the mountain not because it was the pinnacle of achievement or the dream.  But because it was the end of my dream and beginning of God’s.  I often wonder if God stares down at me and laughs at my efforts and my mental marathons.  Not in a sort of mean or condescending way but in a knowing way. Knowing that his dreams and desires for me are far beyond what I can imagine.    Maybe my job at the top of mountain is not to roll down or even jump off but to wait….

Wait, listen and let someone with far better ideas than I dream the next leg of the journey.

For the first time (because I have been here since I left home at 17) I am transferring all my medical records, finding new doctors and making sure I have all the checks in the boxes before I transition up to my new place in the world.  Its a comedy of errors.  I e-mailed the peds ortho folks at Childrens about where to go as an adult with Skeletal Dysplasia (SD) fully expecting a list of adult doctors. Instead I got the clinical geneticist working me in next month to the TRANSITIONAL SD clinic that see adults with SD at Childrens. Initially it bothered me that I would go see the doctors at work considering what happened here. But I figured this was such a good thing…right I mean they know all about my disease unlike other adult docs and its one stop for ortho/rheum/general medicine/PT.  One of those cool, trendy, state of the art inter-disciplinary, holistic sort of places.

I have been going to the doctor and gathering records all week to fax to this new doc.  Today I nearly had a melt down.  I had made an eye appt a month ago…they are extremely hard to come by.  I get there and turns out instead of the resident clinic I have been placed in the optometrist clinic.   In theory most medical students can see the optometrist but  this medical student has connective tissue that makes a tissue thin retina that may  rip itself to shreds one of these days.   Tomorrow is my last day of school and I am leaving the country the day after graduation.  So for the first time in my life I flash my ID and say YOU HAVE TO FIX THIS RIGHT NOW.  And they do because I am almost a doctor and I looked like I was going to cry.  They put me into the walk in emergency clinic. I walked back to the waiting room wondering why am I so unglued?

I go up to medical records and am greeted by a somewhat bored and dour clerk who seems seriously put out about the fact I want four years of records copied and released to me.   Why does this all have to be so difficult?

I packed all evening filling my boxes with dishes, glasses, pictures and books and pondering.  I then went downstairs and while I was folding my favorite pair of fuzzy pink PJs pants I had a moment of shocking clarity.   I DON’T WANT TO BE A FREAK SHOW ANYMORE.   Yes my doctors here don’t know Kniest Syndrome from RA half the time and its great. Because they do know medical students and fractures and chronic pain. They don’t parade me in front of every student, resident and fellow in the tri-state area.  That’s what I remember about being a child and going to the doctor being a complete freak show.  (never mind that in Feb I lived the dream and worked for the freak show as a medical student).  I like the anonymity of just being a young adult patient. I like that internists are not squealing over some weird genetic disease. I like how we solve my problems as a team because I know more about my diagnosis than they do. I know that’s bizarre and ridicilous but its true.

But its time of course me to suck it up and be grateful that I have the chance to have access to such good care and know that while the medical education system makes me feel like a freak show as a patient it is how I got to this point as a doctor.

Its a give and take situation.

We had dinner and on our way home she mentioned a friend of hers, who also has SB was in the hospital and it was her birthday.  It was 8PM, only hour left of visiting hours but who cares. I have of course for 14 more days a pass that can get us in anyway.  We drove down to the hospital, parked in employee parking. I put her in the wheelchair (she walks short distances with a crutch so we had left her chair at home)  and we walked up to Brenner’s. (not to mention that up until about 8 weeks ago walking all the way to there seemed to be forever but with the new shiny hip its no sweat!).

There we were two gimps in the hospital late at night wandering the halls.  We found her friend’s room. I found myself after introductions falling back into the shadows of the darkened room perched up on the counter.  I watched as my young friend spoke words of wisdom and comfort to her friend in the bed. But then the most astonishing thing happened. She began to inquire about her symptoms, her hospital course. She listened in that way they try to teach but really is an art that one is born with. I stayed frozen in the moment both saddened and joyous by the potential in my friend.

Before we left she made sure her friend had her call button, a drink and offered her entertainment. As we walked back to the car I thought about what it means to be graduating from medical school. I know things now. But what I realize perhaps is that the things I know that are the most important I didn’t learn in medical school.   I learned them from my Kniest Dyspalsia in long sleepless nights at AI Dupont just as my friend did here at Brenner’s with her Spinal Bifida.   I told my friend I was impressed with her history and empathy skills. She shrugs it off  as just speaking from experience.

I smile I know that excuse. I use it often.

As I come to the end of my formal medical education I realize that it is not so much the leaving as it is the coming back to my first educators….my tribe…

-we were impressed.

-first you were born

-then you learned how roll over and crawl (although you only combat crawled…tisk, tisk)

-then wonders of wonders you learned to walk.

-then you grew up

wow.

Despite your chronic illness

-we were impressed

-you got up this morning

-you brushed your hair and put on clean clothles

-you got to work on time and were engaged in activity

Despite your use of a wheelchair

-you can drive a car

-You can carry your own stuff

-you can play sports

-you go out and do fun things

Despite your disability or as the ED puts it “health setback”

-you showed up

-you did all the requirements

-you were professional

-you did everything your peers did

-including doing better than average on the exam

Acceptance is very simple it will happen when society realizes that its not despite it I did this or because of it I did this…

Acceptance is… I do. I did.  I will do because I am a human being first and foremost.

Because I am sort of a global health nut and because Dr. B who happens to run the medical school likes me I got asked to go to the OTHER GLOBAL HEALTH DAY and speak.  OTHER being code for where we raise money for the new global health program. It was in the medical school board room.  It should be noted that I had to ask directions to the medical school board room. It should also be noted that my two compatriots were in suits.

The table was set  formally. It had ALL THE DIFFERENT TYPES OF FORKS.  There were three.   3 forks!!! 3 forks to raise money for people with no forks.  It dripped of old south. We had sweet tea with lemon to drink, three courses, key-lime pie and a waiter for the main table who was quite sadly one of three African Americans in the whole room. There were name cards.  I set next to Dr. B at the head of the table.

Most of the attendees were older than my grandparents. . They were retired physicians, people with foundations to their names. And there was me staring down at my forks in my kanga wondering how bizarre life is.  And thinking that I felt more at home in a Masai hut made from cow dung and mud drinking chai with flies than I did in this room in the heart of  my school, in my country.

I spoke, sat down and pondered about trying to describe this scene  to the Kenyan mothers who had braided my hair and trusted me with their babies. What would I say?   Well a bunch of rich white people got together and ate too much so other rich white people could go and take care of babies.

They would stare and laugh. And say doctari nywara your country is a strange place with strange ways.

and I would say.

ndio ndio.

April 2006…I was a basket case. I had a broken arm, a bad case of seasonal allergies and I nearly died in a car wreck (Mom and I were 20 cars back from a 4 person fatality on our way back from Cincy last week). For those of you who knew me the last month of my Senior year. I apologize.

Here is a sample just to prove my point and set the stage for those of you who did not  (UVA nightmare, I make a list, The list gets longer and I decide on Wake and have the craziest week of my life thus far.)

So today I walk into Senior Seminar in my business casual: laughing, talking with all my friends about my new condo in Cincy, vacation, how lame these lectures we have to attend for three weeks are and how dumb it is we have to have it the big auditorium where there are no computer plugs (which  means if you are awake you have to listen to the lecture).

My broken arm is healing and is doing so well I can go without any padding on the elbow. I can wear contacts again after a week of terrible allergies.  I even managed to get my hair to lay flat for once. I almost look like a semi-well adjusted young professional. Maybe, just maybe I could pass for a doctor. The first lecture was actually sort of awesome. It was about what to do if  on a plane and they come over the loudspeaker and say “IS THERE A DOCTOR ON BOARD?”    I TOOK NOTES.

yeah I know…I should have seen it coming. But there I was there like a sitting duck confident, ridiculously happy and completely for a moment unaware that I was about to be betrayed by something I hold incredibly close to my heart.

The next lecture was on the new procedures curriculum.  It was led by two ED attendings (one of who was chief among you can’t graduate in less you suture at 4AM with a broken arm posse). Our class were the guinea pigs for this new curriculum. We read some modules and tracked what we did. But had no real requirements. But those who come after us…they have to pass a test to show they are proficient in procedures. This will be a GRADUATION REQUIREMENT…. I had heard rumors of this but I had been reassured that this would not happen like this.  My happy bubble got a small hole.  You see this isn’t about me…..

I can do most procedures. They are not my strong suit but I can do them with a little extra time and grace. Heck I can suture and do joint taps with a broken elbow! But I am an exception in the land of disability. I can stand for a while. I can get out of my chair. I have relatively minor hand issues. But for someone in a chair, for someone with hand issues or a visual impairment or even a more severe hearing impairment this could be the end of their medical school career at Wake.

My happiness made me brave. I went up after the lecture thinking well I am untouchable at this point. I got into a first rate peds program and am graduating.  Oh how wrong I was.

Dr. ED 1: Hey you passed the ED!  (he thinks this is why I am coming up to see him little does he know he just made me braver).

Oh great! I say. SO I have a question for you guys.  What happens if you have a student who has a more severe disability than me and is a student here?

Dr ED 1: Well we accommodated you…I mean sure you took a extra time and well your work was not always the same…qual..

Dr. ED 2: Not the right word.

(no joke)

Um this isn’t about me. This is about future students at this school. For example if a student like JL who graduated here after a spinal cord injury in his third year what would you do?

Dr. ED 1:  We helped JL…he went to some PMR program in Texas. Not sure what happened after that.

(no he didn’t, it was in Charlotte after Wake int medicine rejected him because of his disability)

Actually he is an attending now and running a spinal cord program and doing some great research. But this isn’t about him either. What would you do if you had a student who could not perform these procedures in the traditional way? What about intermediaries?

Dr. ED 1:  Obviously there are some students who just can’t be doctors.  And we here at Wake have decided these procedures are required for graduation. You have to be able to do a physical exam with out an intermediary and the same with these procedures.

(WE HERE AT WAKE….WHEN DID WE  GET INVOLVED….becuase my Wake…my Wake I chose over UVA.  Because UVA had technical standards that included a list of procedures, was downright clueless, admitted me for fear of a lawsuit and had no accessible classrooms! My Wake told me that they wanted disabled students, they wanted doctors who were going to serve all people and include all voices. My Wake told me that I was an asset not a burden. And this was such a compelling story that my parents gave me early inheritance so I could stay here. My Wake that I have gone to the AAMC (American Assoc of Medical Colleges to talk about TECHNICAL STANDARDS and spoke in glowing terms of my experiences and used as a model of medical school working for students with disabilities….When did my WAKE ….when did WE decide that my tribe wasn’t welcome here?)

So do you think that this should be part of admissions criteria (technical standards)?

Dr. ED 1: Yes.

Have you been in touch with the committee on technical standards that rewriting them? (I am a consultant for this committee)?

Dr. ED1: No, no  but you know I will e-mail Dr. BIGSHOT today about that.  And thanks again for being a part of the procedures curriclum pilot. Oh and congratulations.

I walk away. I don’t fight. Even though every fiber in my being that was so happy, so confident wants to fight, wants to scream. I e-mail Dr. BIGSHOT who happens to have written a letter of rec for me and thinks disabilities are neat….I think…. I tell him I am concerned.  He e-mails me back a two sentence e-mail about looking into it.

And I leave feeling…… GUILTY.  I know that is crazy.  But I am the ambassador here for my tribe.  And I wish I could have not broken my arm under Dr. ED’s nose. I wish I could have sutured better. I wish I could have done chest compressions on a 3001b man with one arm. I wish I could been sharper on adult medicine last month. I wish I could have done something, anything to convince him that WE (as in the TRIBE) have a right to be here. And that doing things differently even in medicine is not a crutch…its just doing things differently.  But more than anything I want to know where I went wrong in that after eight years….HOW can I still feel like I am fighting for a place at the table. Fighting for the right to be able to stand up and say I am a student here too and my school actually is not afraid to admit it….

and I just have one question left what was the congratulations for?  For becoming a doctor? For being the last medical student with a disability admitted to this school?  nope I think I know.

after eight years….more money than I care to admit….countless hours of studying….of dreaming….of cheering….of singing your praises…. you have finally  made a cynic out one of your biggest fans.

Congratulations Wake Forest. We did it.

(at least until I find a way to fix it). (you know in the next four weeks…before I graduate and leave and will no longer be that awkward thorn in their side)