That I appreciate my scars for the story they tell.
That I value the oddly shaped contours of my poor long bones.

That I love the strange angles that my contracted ankles and elbows grace me with.

But I would be lying.

But then again I have been lying a lot today.

All three of my best friends are getting married in the next 18 months.  Today I went to get fitted for my first of several bridesmaid dresses at the infamous David’s Bridal which has never been my favorite.  The dress is sleek, asymmetrical, one shoulder empire waist canary colored gown.  My shoulders have some impressive scars. My elbows are awkwardly angled. All around me are girls with shoulders with no scars, with normal contours.  And for a moment I feel naked, exposed and ancient.

I rip the dress off, buy it (ugh!) and run home. My best friend who knew I was going dress shopping calls me all excited. I try so hard to keep up the level of excitement because its her wedding.  And I want her to be happy.   She nearly drags it out of me, I dance around the issue a bit, mumbilng a bit.  She tells me I can return the dress, I can wear a shawl.  She is upset.  I tell her its fine.  SO FINE.  DOn’t worry about it, its not her, its not the dress its just me.

My disability mentor Bliss tells me  that I should embrace my body and I wholeheartedly agree.

Its the practice that sometimes hard, especially when you are in your 20s and have to wear frequent formal wear not designed for anyone but especially not for bodies that are different than average.

One of my friends here who has Marfan’s and some other skeletal issues has had some “work” done on several scars.  I wish I had her courage, however, the whole starving children in Africa and my intense PTSD/extreme dislike for being a surgical patient rule this out. She tells me either way that my feelings are normal.  I want them to be normal but I also dislike the idea of hating the body I have.

Because in my head I agree with Bliss, bodies are beautiful in all shapes, sizes and with many marks and contours that tell our stories. So I pray God gives me grace to love my body and help others love theirs.

i’m getting married in chacos and capri pants.

OK so maybe not capri pants but chacos and a dress that drapes my shoulders a bit and doesn’t make me feel like a member of an alien race.

JANE, another colleague says, “I think BOB got that schedule because he had JESUS on his side.”

I laugh and said, well I go to the same church and it didn’t work for me.

JANE and JOAN stare for a moment.

JANE says, “I didn’t know you were an evangelical”  But she said it in such a way that it was like I didn’t know you smoked or I didn’t know you throw rocks at puppies on the weekends…..

“UM, well yeah….maybe a bit more laid back.” I flounder wanting desperately to explain I didn’t love BUSH, Im a pacifist, I haven’t bombed any abortion clinics, I watch trashy TV sometimes, I read Harry Potter and yes in my less thoughtful moments I use off color words I learned from my naval heritage.

JANE smiles, “Yeah, well I love Bob, I was just joking around.”

Then one of us got paged.

….two weeks latter….

Two weeks later I am out with GABI who I have been friends with for a while but whom I find myself having a series of deep and more personal conversations with.  GABI tells me she is something akin to gnostic. She impressed I know what that means and we start talking world religions. I am holding my own.  Then she comes right out and says it:

“So you love Jesus? You’re a Christian?”

I explain that in all my studies what impressed me the most was the incarnation that God would come down and live as we do to provide a vehicle to get us out of a spiritual life the equivalent of a TO DO LIST which we could never complete  and that its all about the relationship with GOD that we can have through knowing and believing in Christ.

This question was easy.

It was the series of next questions that I found myself sweating a bit.

“So how do you feel about missionaries?” (which is a big question if you look at historically and currently) (or as I like to say do you mean in the JOSEPH CONRAD’s HEART OF DARKNESS sense?)

I start with HEART OF DARKNESS and colonialism and move on down to my own experiences. I end with saying what I believe in the context of a relationship is quite different than the HEART OF DARKNESS sense.  She nods and talks about how Church NGOs do a lot of good.

“So do you think, Christianity is the only path to heaven? DO you believe in a literal hell?”

(these are loaded questions: If the answer is YES and YES you are condemning 5 billion humans on earth today to hell).

I believe in Christ (note that I separate Christ and the gospel from Christianity which is a human construct) is the truth and the path. However, I don’t really know how it all works out.  Only God truly knows people’s hearts and knowledge.   As for Hell, Milton and Dante seem to know a lot more about it than I do because other than a parable or two in the Gospels and some heavily loaded metaphor in Revelation, Hell is not described in detail in scripture.  I know it will be separate from GOD which sounds terrible but in the spiritual sense not so much the physical sense.

At this point, GABI who is also a physician interrupts me and says “When I think of Hell, I think of homeless schizophrenics at war with their selves and living cast off from any sense of human contact.”

I nod, who knows, maybe HELL is like that.  I continue…

As for who goes to whatever it is, well again GOD only knows.   The party line Billy Graham crusade answer is that its a punch ticket kind of thing, you go through the right prayer, life style change or whatnot and you get the right ticket punch. Over the millennium Christians have  made up all kinds of ideas of  loopholes. Babies for example apparently are innocent so if they die, its OK they get to go without a ticket, developmentally disabled people too (a babe in Arms kind of ticket).  These babe in arms kind of tickets are made up, they are not in scripture, we don’t know what happens.  Now, do I honestly believe that God sends babies to Hell?  My understanding of God is somewhat different than that, so NO I don’t believe that. But I don’t how it works.  So do I believe that folks in some dark jungle who never heard about Dante or JESUS go to hell?  My church peers would say that’s on us to some degree for not going as missionaries.  Do I think God will send them to hell?  Again I do not know.  I don’t know what that looks like.  I also don’t know exactly what will happen to all the people pre-Jesus. I don’t know.  SO do I believe people, go to hell, YES but I don’t know who or where or what exactly it is.

As for Heaven, some believe the Kingdom of God will come to earth over time as we build it, some believe we will go to it.  I think the former is ambitious and maybe a bit impossible but I think the Gospels are pretty clear about trying anyway. While I am interested in hell, I am far more interested in what we do now to mirror heaven and spread its seeds in the mud and mire of the hellish elements of now.

I explain as well that while I believe in things absolutely, I live with mystery in my faith, of unanswered questions and gratitude to a GOD who is big enough to be mysterious to my human mind. I live with unanswered questions, with faith and I am OK with that.

My friend seems impressed.   We drank our tea and then we go home.  I think she expected me to start reading Romans out loud and pray the sinner’s prayer and give her a tract.  Because I am evangelical, right?

As I go home that night, I think what would my friends from church say if they listened to this conversation? What would BOB say? What would they say if they heard me admit that I don’t have all the answers?  Would they have done the same?  Some would have, but I think most would have stayed within safety of the party line where we have the answers.  I think they would think that I lost my religion.

Am I failed evangelical?  Have  I gone native in all my intellectual quests of reading the Koran, the Mormons, the Buddhists, the Baptists, the Skeptics and the Gnostics, dissecting the layers of culture, history, human creativity from the raw text, from what we call religion?  Do I believe in nothing because I “tolerate” and analyze everything?

NO.

I do believe in something, actually its quite akin to what I believed when I told my parents I wanted to be baptized when I was five before I knew about all of the other stuff we tacked on to the truth.  I believe in the love of a GOD who would love me even though I hit my sisters Emily and Tori every day and some times wish I could go back to being three when I was an only child.  A GOD who created the trees, the deer behind our house that left footprints in the snow, my cat, the moon, the stars Daddy taught me the names of, a GOD who created an elaborate plan to love me  me despite the my wrongs. The plan included sending someone he loved like I loved my parents and my paternal grandparents (and mostly Emily and Tori), a piece of himself who suffered through annoying little siblings and stuff and in the end died pretty awfully  and somehow in something that seemed at the time a lot like magic came back alive to get the rest of us before he went ON so we could all still be friends with God.

GABI says her husband and I have little girl and boy souls, we still believe the same as we did when we were children.

I would say that’s actually quite biblical and I am OK with that.

What has changed somewhere between church camp and now  is that the religious brainwashing has melted gradually over the Serengeti grasses, my ferocious appetite for books and reading, the wails of orphaned, neglected Romanian babies, long nights of organic chemistry followed by ethics and human rights essays in college and blood dripping off my gloves, sweat and tears running down my face as I beat on a child’s chest trying to save their life, I lost my religion.

And found JESUS.

The kind of friends who you can show up dripping wet on their door step after the worst day and they will let you in, let you cry a bit, tell you to clear off the laundry from the sofa and rest or hand you a crying baby and to get busy (which ever seems the right reaction).  The kind who tell you the truth both good and bad. And the kind of friends that point you to Christ and speak wisdom into your life.

I am blessed young woman. Because at quick count I can count about 10 friends like that in my life.

Then the sermon went on to making your life where you are, finding those friends where you are and locally because thats how the local church was. The elder argued that we cant live elsewhere. We have to live here and now.

I shifted uncomfortably. I have tried very, very hard to build roots like that here. But frankly they just have not dug deep.  I go to things post-call, I go to things when I am so sleepy I can’t stay awake, I am in a small group, I go to social events, I go to church and I have done these things for a year an half but the people who are the friends that keep me sane are not here.

One out the 10 are local and they followed me here from NC.  You may ask how I make this work. How I deal with my best friends being far way? How I keep myself accountable? How I keep myself sane?  Well when you grew up all over the US and plan on living all over the world…you learn fast.

I felt guilty about this and then I just realized you know this is  a season of my life.  God knows I have tried and he seems to have brought people into my life for the right seasons. I have faith he has done the same here.

Maybe its not the 15 people in my small group, maybe its the 6 amazing young women in my residency program who I spend consistent time with. Maybe its the children who steal my heart, maybe its the preparation for having my friends a continent a way.

Here’s the truth. I am a little bit more of a Paul/Priscilla kind of figure than a Lydia or Mary/Martha. Jesus have multiple friends in different cities.  I am a nomad by birth and by calling.

So make new friends, invest in where you are, yes.  But keep the old.

Baking something yummy.

North Carolina Wine

Old Friends.

New Friends.

Summer Nights.

Clean clothes.

Good Books

Clean hair.

Pedicures

Grace

Children and their wisdom.

A Good Night’s Sleep

I am so tired I can hardly move much less make a life altering decision for someone else’s baby.   I am so tired that despite my fleece, knee high socks and scrubs I am shivering. My body aches, my right hip feels like its going to burst and the muscles around the shiny hip are stained.  I am tired to the point that I am short tempered, angry and I can’t remember why I am doing this no matter how hard I try all I can feel is anger. Anger at the child. At the parent. At the nurse. I try so hard not but all i feel is anger. Its not the baby’s fault. Its not the baby’s fault I say to myself.  As I drag myself to the room of another sick child, I can’t remember the child’s name and awkwardly refer to them as “the sweet baby” or “pretty little girl” or “buddy”.  I am covering 60 kids and I am on hour 23 of call and I just can’t bring myself to care beyond just making it another two hours to sign out when my comrades will get there…..and beyond to 7 hours from now when I can go home and sleep in my warm bed….

I look down at the baby, someone’s child and all I can think is how did I get here and why am I going through this torture.  Where is the compassion I had in medical school? Where is the excitement I had in college? Where is the dream?

I am making preparations for Kenya. I am counting down the hours till I can pack up my little CRV and drive across the mountains home for a night, north for a precious and much needed steroid shot and then boarding a plane to take me EAST…..

and then SOUTH. to warmth.

escape.

to more sick children….but somehow in Kenya its different.  Maybe it waking up to the Great Rift Valley with the mist burning off the smoldering African plains, maybe its the craziness, the chaos that is a hospital in rural East Africa, maybe its the grateful smiles of every parent, maybe its quiet morning prayers. Maybe its that life exists on Africa time.  Maybe its that I can’t call for 20 consults.  Maybe its that the internet works ON A GOOD DAY only. Maybe its because for a little while I can be Amy again not Amy the super intern at a top program or Amy who wants a competitive fellowship or chief spot.  I can just be Amy who knows some medicine, who knows what its like to suffer and who works to find some way to bring those things together in a productive way that brings healing. Maybe I can just be.

Its the 4 AM of my 12 month internship and I am tired, cold, sore and angry.

so I do the only thing I know how to do….fly, fly, fly away to somewhere life is harsher yet simpler.   Somewhere that i knew and learned compassion and that I pray will be gracious enough to teach and humble me again.

My patients don’t have a buck and they don’t have a vote, they can’t buy their own health insurance/health savings account/or even barter a chicken in exchange for their care. So no matter your opinion or political affiliation, stand up for your children and grandchildren (Not to mention all my people who always get the shaft any way (all the gimptastic, disabled kids who need health care so they can grow up and become politically incorrect pediatricians if they want)).They are the future voters, physicians, teachers, politicians and citizens of this country. They are also the patients whom if we don’t provide care for now will be the future citizens on disability, medicaid and welfare.

Please help me support children! Please help me by clicking on the link through the National Association of Childrens Hospitals and sending a letter through their program to your representative. (it will link you to the right people in your area through the link and it took me exactly 125 seconds) (or if you have more free time than me and feel inclined write your own letter). Make sure to note your local Children’s Hospital or a Hospital that has made a difference in your life or the life of your child or grandchildren!!!!!!!

HELP KIDS!

Love,

Amy

(just another American voter who just works 90 hours a week to takes care of other people’s babies who apparently are just not that important)

Then the conversation turns to me.  So Amy?

WHAT I SHOULD SAY if I WAS BEING AN 100% honest: um.. in five  years…..I want to work and teach  in Africa.  I save money for plane tickets.  I  am not sure if I will ever own a home. I dream about having a clinic that has an x-ray machine and a wheelchair ramp.   Oh and I dream about having two shiny hips  so I can put my socks on in the AM without extreme pain.  My desires for the next 10 years:  I want to get married but even if I dont I want to adopt babies, currently I am praying about interracial adoption because African American babies particularly boys hardly ever get adopted. And I want to write books about disability and doctoring and Africa.

Response: Oh.   silence.

Right so Bob, where did you say you were looking to buy a house?

What I say instead: Oh you know get married, have some kids, get a academic pediatric position somewhere, write some books.

Response:  DO you want to buy a house?

silence.

Me: Um probably not.

Right, so Bob…?

Recently I have really been trying to make friends here outside of work. I love my work friends but it would be nice to have friends at church or elsewhere. Its been about like the above snipet every time.  Apparently my interests at 26 are supposed to be marriage, career, house and a retirement plan.   I may live in the city. I may go to a inner city church plant but I feel like I live in the suburbs. I am surrounded by people who in five years will live in the suburbs and have 2.5 kids, a SUV and picket fence.

How is it that I can make friends in  the slums of Romania or with beggars and homeless young mothers in Africa but I struggle to  make friends with my peers in the US OF A? How is it I have so little in common?

I find myself smiling knowingly. It’s not faith healing that our leader is preaching, its wholeness. Its realization that what we see as doctors, as humans is only a small part of what makes a person. The illnesses we seem so keen on fighting are a part of a larger whole. He is talking about how people are never bad outcomes. But as I look at my peers’ expression I shift uncomfortably. I realize that I am once again in the minority. I get this because this is fundametal to who I am, to how I see the world as a wounded healer. To my young, healthy, ambitious peers this is a very hard concept.

He goes further and begins to tip another sacred cow of medicine… He says a word that we say all the time in church but really has lost the luster it had centuries ago: L E P E R. He tells the story of St. Francis of Assisi walking down the road and hearing the clanging of a cow bell. He tried to get out of the way but found himself transfixed to the spot in the middle of the road as a leper with a warning bell around his neck approaches. He talks to the LEPER who is shocked that he is spoken to. As he turns to go, the LEPER turns into Jesus for a split second. St. Francis is brought to his knees.

I have never met a patient with leprosy. But I know about LEPERS.

These are all real stories of real people who I have met who all needed physical healing of some sort but what they really needed was understanding and compassion. Some of them had done things to themselves but most were a vicitim of how they were born, somone’s else choices or worst of all society’s warped conception of their lives.

I took a chance and tell perhaps the least offensive story for my audience (the one about the street child on the subway). At the end I briefly mention some of the other new forms of lepsory that exisit in our medical and wider culture.

It makes us all cringe a bit.

But I think that is the bibical meaning of the word Leper….it was not meant to be PC or assuage our sensitivites it was to call us to radical wholeness, compassion and sharing of brokeness with our fellow man.

I am still that navybrat inside. I am still a homeless  nomad always in search of my next adventure. Or so I thought till I moved to the Midwest.  Yes my house was unpacked within 48 hours of hitting Ohio soil.  Yes by the time orientation started I had all my paperwork in to the state of ohio,  been to the grocery store and had house plants. I transplant well.  My family is still  like a moving machine.

But the difference is I am homesick. For first time in my 25 years of moving. I am truly homesick. Its not my parents, its not my school, its not even my friends that I miss. Its the sameness.  Its the culture. Its the manners: the thank you m’am, No Sir, hold the door open for a lady or a baby stroller every day occurrences that I have taken for granted.  Its the sunset over the mts in the summer all lavender and deep blue blending together. And its also the ability to get in my car and be at the ocean in 4 hours or with my grandparents in 4.5 or nearly all my best friends from college/high school and my family within 2-3.  Its the anticipation of basketball season even as early as July.  Its the accent, deep, slow and quick to laugh like a summer afternoon.  Its the people walking their dogs and waving at you while you water your plants. Its the neighbors who don’t need a reason to walk on over and shoot the breeze with when you get your mail. Its the check out lady at the grocery store who tells you about her dreams of becoming a famous artist while she rings up your ground turkey and bananas.

These things leave a hole deep down.  A hole that cannot be filled by amazing ice cream or my awesome, new friends who are just as nerdy and in love with pediatrics, global health and board games as I am or the best farmer’s market I have ever been too or a faith based pediatrics clinic that I get to be a real pediatrician one half day week for the next three years or my cute little emerging church…..

And I realize that I am no longer a nomad.  I have a home.   And its sort of rocks my world.  Because being a nomad is who I have been for 25 years.   I realize that for the better or for worse some time between 10th grade moving to Roanoke and May 17, 2010 graduating from Medical school.  Western NC/VA (very similar although unique in their own rights) became home.  Somehow the southern drawl, the BBQ, the outdoorsy, laid back, sweet tea, banjo music and James Taylor with a touch of class up Roanoke way has taken root and its not going to be able to weeded out by Ohio or probably anywhere else in the future.

It doesn’t mean that I am not glad to be here. That I don’t wake up and pinch myself that I get to learn pediatrics at one of the best (if not the best) children’s hospitals in the world.  Because I am still doing that.

It just means that when people ask me where I am from, for the first time in 25 years…I have an answer.   And it an answer that fills my heart with longing but also a sense of belonging, of being from…

And I think that doesn’t mean I won’t thrive anywhere, that I won’t thrive here, it just means I have a home.

and I didn’t know I needed one.  But I think perhaps I am a bit more whole now that I have one.

We had dinner and on our way home she mentioned a friend of hers, who also has SB was in the hospital and it was her birthday.  It was 8PM, only hour left of visiting hours but who cares. I have of course for 14 more days a pass that can get us in anyway.  We drove down to the hospital, parked in employee parking. I put her in the wheelchair (she walks short distances with a crutch so we had left her chair at home)  and we walked up to Brenner’s. (not to mention that up until about 8 weeks ago walking all the way to there seemed to be forever but with the new shiny hip its no sweat!).

There we were two gimps in the hospital late at night wandering the halls.  We found her friend’s room. I found myself after introductions falling back into the shadows of the darkened room perched up on the counter.  I watched as my young friend spoke words of wisdom and comfort to her friend in the bed. But then the most astonishing thing happened. She began to inquire about her symptoms, her hospital course. She listened in that way they try to teach but really is an art that one is born with. I stayed frozen in the moment both saddened and joyous by the potential in my friend.

Before we left she made sure her friend had her call button, a drink and offered her entertainment. As we walked back to the car I thought about what it means to be graduating from medical school. I know things now. But what I realize perhaps is that the things I know that are the most important I didn’t learn in medical school.   I learned them from my Kniest Dyspalsia in long sleepless nights at AI Dupont just as my friend did here at Brenner’s with her Spinal Bifida.   I told my friend I was impressed with her history and empathy skills. She shrugs it off  as just speaking from experience.

I smile I know that excuse. I use it often.

As I come to the end of my formal medical education I realize that it is not so much the leaving as it is the coming back to my first educators….my tribe…